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Paying family caregivers

Programs that let family members be paid to give care, often through Medicaid self-directed services.

3 states and 6 rows on record · updated Oct 15, 2026

Where it stands

Each state is shaded by the furthest stage of any row in this topic.
AKMEVTNHMAWAMTNDSDMNWIMINYCTRIORIDWYNEIAILINOHPANJCANVUTCOKSMOKYWVDCMDDEAZNMOKARTNVANCTXLAMSALGASCHIFL
No record found: AK, ME, VT, NH, MA, WA, MT, ND, SD, MN, WI, MI, CT, RI, OR, ID, WY, NE, IA, IL, IN, OH, CA, NV, UT, CO, KS, MO, KY, WV, DC, MD, DE, AZ, NM, OK, AR, TN, VA, NC, TX, LA, MS, AL, GA, SC, HI, FL. In effect or in use: NY, PA, NJ.

Federal: in effect or in use.

When it happened

NOWNew York: New York CDPAP single fiscal intermediary implementation, 2025-09-01Pennsylvania: Pennsylvania Caregiver Support Program, 2026-01-01New Jersey: New Jersey Personal Preference Program fiscal-intermediary transition, 2026-01-07Federal: CMS Medicaid HCBS authorities guidance, 2026-07-04New Jersey: New Jersey MLTSS and PPP home-community guidance, 2026-07-04New York: New York home-care consumer and LHCSA guidance, 2026-07-04202220232024202520262027
One dot per dated event, or per row date where no events are recorded, shaded by stage. Every row has a date.

State by state

Federal first, then states A to Z. Open a line for its rows and sources.

JurisdictionStatusKey detailDate
JurisdictionFederalStatusIn effect or in useKey detail
CMS Medicaid HCBS authorities guidanceShow details and sources
  • CMS Medicaid HCBS authorities guidanceActive, Implementation Jul 4, 2026

    CMS's HCBS authorities page explains that states have several Medicaid HCBS options, including 1915(c) waivers, 1915(i) state plan HCBS, 1915(j) self-directed personal assistance services, and 1915(k) Community First Choice. CMS's HCBS quality page connects those authorities to quality measurement and quality-improvement work.

    Who it affects: Medicaid HCBS beneficiaries, family caregivers, disabled people, older adults, state Medicaid agencies

    Why it matters: A caregiver-facing corpus needs one federal guidance anchor that distinguishes the Medicaid authorities behind state waiver, self-direction, and community-first-choice pathways without turning the row into eligibility advice.

    Last reviewed Jul 4, 2026

DateImplementationJul 4, 2026
JurisdictionNew JerseyStatusIn effect or in useKey detail
New Jersey MLTSS and PPP home-community guidance2 rows on record. Show all and sources
  • New Jersey MLTSS and PPP home-community guidanceActive, Implementation Jul 4, 2026

    DMAHS describes MLTSS as expanding home- and community-based services and coordinating long-term services and supports through NJ FamilyCare managed care, while the PPP page describes self-directed services that can let qualifying members choose workers, including trusted individuals such as friends, relatives, or neighbors.

    Who it affects: NJ FamilyCare members, older adults, disabled people, family caregivers, authorized representatives

    Why it matters: This is the official guidance bridge between New Jersey's managed long-term-care model and self-directed personal care, but it should not be used as a stand-alone eligibility determination.

    Last reviewed Jul 4, 2026

  • New Jersey Personal Preference Program fiscal-intermediary transitionImplementing, Implementation Jan 7, 2026

    DMAHS posted PPP fiscal-intermediary transition resources; January 2026 materials describe Horizon NJ Health member transition from PPL to Palco and PPP reimbursement-rate changes effective January 1, 2026.

    Who it affects: NJ FamilyCare members, PPP participants, authorized representatives, family caregivers, self-directed workers

    Why it matters: Fiscal-intermediary changes can disrupt enrollment, payroll, timesheets, and worker continuity even when a member's underlying personal-care need has not changed.

    Last reviewed Jun 18, 2026

DateImplementationJul 4, 2026
JurisdictionNew YorkStatusIn effect or in useKey detail
New York home-care consumer and LHCSA guidance2 rows on record. Show all and sources
  • New York home-care consumer and LHCSA guidanceActive, Implementation Jul 4, 2026

    NYSDOH consumer and Health Profiles pages explain home-care agency types, complaints and questions, and licensed home care services agencies. The CDPAP page separately anchors the consumer-directed pathway for Medicaid personal assistance.

    Who it affects: home-care clients, family caregivers, older adults, disabled people, home-care agencies

    Why it matters: Caregivers need a clear map of agency home care, certified home health, and consumer-directed personal assistance before comparing programs, workers, and complaint routes.

    Last reviewed Jul 4, 2026

  • New York CDPAP single fiscal intermediary implementationImplementing, Implementation Sep 1, 2025

    CDPAP administrative rules and transition materials changed the pathway for consumer-directed home care and personal assistant enrollment.

    Who it affects: Medicaid home-care consumers, personal assistants, family caregivers

    Why it matters: A registration, payroll, or documentation failure can disrupt care at home even when the underlying service need has not changed.

    Related programs: Consumer Directed Personal Assistance Program (CDPAP)

    Last reviewed Jun 17, 2026

DateImplementationJul 4, 2026
JurisdictionPennsylvaniaStatusIn effect or in useKey detail
Pennsylvania Caregiver Support ProgramShow details and sources
  • Pennsylvania Caregiver Support ProgramEffective, Implementation Jan 1, 2026

    Pennsylvania maintains a statewide caregiver-support pathway through the Department of Aging and local aging network partners.

    Who it affects: family caregivers, older adults, people with disabilities, kinship caregivers, area agencies on aging

    Why it matters: Caregivers need to know when respite, supplies, counseling, training, or reimbursement-style supports exist outside Medicaid eligibility alone.

    Last reviewed Jun 18, 2026

DateImplementationJan 1, 2026