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New York frontotemporal degeneration registry

New York enacted a frontotemporal degeneration registry and directed DOH to publish registry information and family resources through a public webpage.

New York · Implementing · Implementation Jan 1, 2027

What it is

What changed
New York signed Chapter 479 of 2025 establishing an FTD registry and directing DOH to publish registry information and family resources through a public webpage.
Why it matters
FTD is often misdiagnosed and heavily caregiver-intensive; the row connects neurodegenerative disease policy to diagnosis delay, family resource navigation, and public data.
Who it touches
Family caregivers, Care providers and plans, People receiving carepeople with FTD, dementia caregivers, families seeking diagnosis, clinicians
What it does
Plans, studies, registries or guidance
Identifiers
S 598 (session 2025)

Sources

Last reviewed Jun 18, 2026. This is information, not legal advice; check the source for the current text.