Federal ALS Registry funding protection push
Members of Congress urged appropriators to protect and expand funding tied to ALS research and the National ALS Registry.
Federal · Active · Vote Jun 2, 2025
What it is
- What changed
- A bipartisan congressional effort asked appropriators to support ALS research funding and protect the National ALS Registry; the CDC registry remains the federal surveillance and research infrastructure to watch.
- Why it matters
- ALS families and advocates depend on registry and research infrastructure for prevalence data, study recruitment, and service-planning visibility, but this row does not claim any funding level was enacted.
- Who it touches
- Family caregivers, People receiving care, Businesses and agencies that must complypeople living with ALS, ALS caregivers, researchers, veterans with ALS
- What it does
- Funds programs or services; Gives people a right or protection; Plans, studies, registries or guidance
Sources
Last reviewed Jul 4, 2026. This is information, not legal advice; check the source for the current text.