California neurodegenerative disease registry expands ALS reporting
California's Department of Public Health says ALS reporting into the California Neurodegenerative Disease Registry starts July 1, 2026.
California · Effective · Effective Jul 1, 2026
What it is
- What changed
- California is adding ALS to mandatory neurodegenerative disease reporting, requiring providers who diagnose or treat reportable neurodegenerative disease to submit case information to CDPH.
- Why it matters
- Registry reporting can improve disease surveillance and research visibility, but it also creates new data, privacy, and explanation needs for ALS families and care teams.
- Who it touches
- Family caregivers, Care providers and plans, People receiving care, Businesses and agencies that must complypeople living with ALS, ALS caregivers, neurology practices, hospitals, researchers
- What it does
- Requires something of providers, companies or agencies; Plans, studies, registries or guidance
Sources
Last reviewed Jun 18, 2026. This is information, not legal advice; check the source for the current text.